Thanks to Lil Chris' mom for posting about a new movie in production about CF called "Salt". The filmmaker, Max McGuire, is a 26 year old with CF.
Here's a synopsis of the synopsis:
At 21, the future is limitless. The universe fair, the horizon endless. At 21, we're thinking about that dream job looming at the end of college, how to afford that backpacking trip through Europe, or just when we'll finally meet her, the girl, fall into wild-blind love.
At 21, Will Valley isn't thinking about any of these things.
Will's thinking about the three hours of physiotherapy he has to perform that day, every day. He's thinking about the half-dozen tablets of Creon-20 he downed with his morning pancakes, and the two weeks he spent in the hospital last month, poked and prodded by a salvo of doctors. He's thinking about what it means to be a middle-aged man at 21.
Then in walks love one day, bringing sunlight. Her name's Hannah. She's wise to his defense mechanisms, immune to his ironic detachment, thinks his gritty repartee could definitely use some work. She's seen it all before, you see. Her older brother died of CF one year earlier. By now she knows the score.
"Doesn't matter if you live to thirty or three-hundred," she tells him. "Everybody thinks life's too short." So what are you going to do with the time that you've been given?
I'm looking forward to seeing a realistic portrayal of CF. Most movies and tv shows like to romantize illnesses and don't show the true everyday experiences, but this one should be different. Keep an eye out for it and spread the word!