Seamus' cough has never been this bad. He was up all night coughing and choking on mucus and none of us slept at all The only time he was remotely this bad, he ended up on IV antibiotics in the hospital. He's been on oral antibiotics at home for just a few days so hopefully they'll start working soon. If not, they want us to bring him into clinic.
I read all the other CF mom's blogs and I know this isn't all that bad compared to how it could be. I give so much credit to the families who deal with pulmonary stuff all the time but for Seamus, it's really rare so it's really scary to me.
Most of the time, I'm in denial. There's not a minute in a day that I don't think about Seamus having cystic fibrosis but I've always had the "comfort" of knowing he "only has GI issues". I read the other blogs and think, "Thank God, that's not us" but last night lying in bed helplessly listening to him, I couldn't help thinking "Okay, is this the beginning? Has the lung damage started?"
I try to tell myself that I'm overreacting. Of course he'll be better soon and his lungs won't be permanently affected from this episode. But how long will that be true? As a CF parent, I cling to the hope that a cure will be found before his lungs are damaged beyond repair, but as I lay in bed at 1:00 AM and hear my precious son gasping to breathe between coughing fits, it's really hard to hang on to that.