Monday, April 6, 2009


We had to be at the hospital at 6:30 this morning for Seamus' endoscopy. Things went well and the doctor declared his GI tract looked "pristine". You can't get much better than that. We have to wait about a week for the biopsy results but he didn't expect to find anything.

This was about the 5th endoscopy Seamus has had so we're used to the routine but it's never easy walking him back to the operating room and watching them put him under. He usually recovers pretty easily but the last time he had this done, there was a big mix-up in the recovery room and they put him about a foot away from a teenager with CF, they literally could have reached out and touched each other. I heard the kid coughing like crazy but I assumed it was from the anesthesia. When I heard his doctors talking about Pulmozyme and Tobi, and telling him "all the gunk in his lungs had gotten stirred up" during the surgery, I freaked out. Of course, they wouldn't tell me what he had but I knew and I couldn't get the nurses to move him because they didn't understand about CF. They actually told me "Don't worry, he can't catch it." It was obvious the kid next to us was very ill and I had no idea what he had growing in his lungs and coughing out into the air Seamus was breathing. There's a reason they want CF patients to stay three feet apart. Finally after calling the director of the CF clinic, who was speechless, and said this was a huge mix-up, we got Seamus' bed moved across the room.

This time was much better but it will never be easy seeing him laying in that hospital bed.


Alicia said...

Yikes about the last visit. It's frightening how clueless some medical personnel can be! So glad everything is clear this time. When will he have to get it done again?

Julie said...

They usually do one when his GI symptoms change. He was doing well for a long time but he started gagging on food and vomiting occasionally so they wanted to check it out. Hopefully, it will be a long time before he needs another one.

Tooter's Mommy (Courtney) said...

I hate it when Olivia has to get put under!! I am a nervous wreck until she is in my arms again.

I'm sorry that you had to deal with ignorant people at the hospital. I'm sure it was hard not to unleash a wave of fury on them. I constantly have to remind myself to be nice when we're at the hopital.