Wednesday, January 14, 2009

Dealing with questions

I was reading another CF mom's blog yesterday. Her 5 year old daughter has started asking questions about CF and why she has to do her treatments every day. The mom's not sure how to handle them.

I suggested this book, Little Brave Ones:For Children Who Battle Cystic Fibrosis.. It's written from a little girl's point of view who has CF. There are lots of pictures of her doing her daily routine as well as other kids with CF from all over the country, having treatments but also just being regular kids. Seamus loves it because he knows they are real kids just like him. We talk about how some kids, like Krista from the book and him, need to do certain things that others don't to stay healthy.

We also spend time surfing the blogs. There is a great community of CF families who blog. I used to think it was a great support for James and me but now I realize, Seamus can get a lot out of it too. He loves to see pictures of Samantha, Phoenix, Lil' Chris, Olivia, Seren and Dylan, and lots of others. So keep up with the pictures, CF bloggers. Seamus loves it!

4 comments:

Piglet's Mommy said...

Thank you for the tip about that book!! Obviously, it will be a while until I have to answers questions for Olivia, but its something I think about all the time.

Jessie said...

Thanks for your help. I'm glad that you left a comment I have never been to your blog before. How old is Seamus?

Julie said...

Seamus is three but wise beyond his years. He's spent a lot of time in the hospital and is very inquisitive.

Lil' Chris' Mom said...

Thanks for the info about the book, I'll probably need that in a lil' bit.

I didn't know Seamus liked all our pics! Now that I know, I'll be sure to put more pics up on my blog of Lil' Chris:)

Hmmmm, maybe Lil' Chris is getting old enough to look at your pics and other blogger pics? Didn't hit me til now! I'll have to try it. Thanks again,
M