I was reading another CF mom's blog yesterday. Her 5 year old daughter has started asking questions about CF and why she has to do her treatments every day. The mom's not sure how to handle them.
I suggested this book, Little Brave Ones:For Children Who Battle Cystic Fibrosis.. It's written from a little girl's point of view who has CF. There are lots of pictures of her doing her daily routine as well as other kids with CF from all over the country, having treatments but also just being regular kids. Seamus loves it because he knows they are real kids just like him. We talk about how some kids, like Krista from the book and him, need to do certain things that others don't to stay healthy.
We also spend time surfing the blogs. There is a great community of CF families who blog. I used to think it was a great support for James and me but now I realize, Seamus can get a lot out of it too. He loves to see pictures of Samantha, Phoenix, Lil' Chris, Olivia, Seren and Dylan, and lots of others. So keep up with the pictures, CF bloggers. Seamus loves it!