Quiet

Not much going on lately. Seamus had another home clean out last week and an appointment with his GI doc. He has some concerns that the flovent treatment he's been on for his EE for almost a year is now causing fungal esophagitis. His episodes of DIOS seem to be happening more frequently, and although his food allergies and EE aren't directly related to his DIOS, anything that affects his upper GI tract seems to have an impact on the lower GI tract too. He has to confer with Seamus' allergist but it looks like another endoscopy is in the near future.

Although Seamus still mentions that pooping hurts and has a stomachache most of the time, he still is in pretty good spirits. He went back to school today which makes him very happy. It's really easy to make Seamus happy. I wish I could have the same attitude.

Finally, Christmas pictures

We finally got our computer back so I could upload the pictures from our camera.

I also wanted to post about New Years. The four of us went to dinner and then Ga went to church so the Colemans had a little celebration at home. We all made hats (that seems to be a big thing lately) and had sparkling grape juice in wine glasses. Seamus really liked his glass because when we went around and made toasts about things we liked, he kept saying "Here's to Cups!" Then we all clinked our glasses and said "Cheers!" After about ten rounds of that with increasingly harder clinking, we had a little countdown and he went to bed in his brand new big boy bed. He really felt like a big kid.



On Saturday, we had a big party to celebrate our new addition. Seamus was in heaven again. He just loves being around people and being the center of attention. He's such a ham.

Breath-ing

It's been a while since I've posted because we've been very busy at our house. We had a nice New Year's, not very eventful, and then on Saturday, we had a big housewarming party to celebrate the new addition to our house finally being done! I'll post more about those later, with pix, but I wanted to write a quick post while yesterday was still fresh in my memory.

The last couple days have been rough with Seamus' GI issues. His DIOS symptoms (Distal Intestinal Obstruction Syndrome) are back again even after spending a night in the hospital three weeks ago for a clean out. Even though he has not been feeling well, we needed to get out of the house. We decided to go on an adventure yesterday to a local nature preserve that has lots of trails where he could ride his scooter.

It was a short car ride but he was very tired by the time we got there. After riding his scooter for about 5 minutes, he was exhausted so I started carrying it. I noticed he started to lag behind so I said, "Are you too tired?" and he responded, "No, I'm just happy."

The air felt really good so I showed him how to take a deep breath through his nose and let it out with a deep exhale through his mouth. He liked the feeling of the cold air so he repeated it over and over saying "The fresh air is nice. I'm breath-ing."

As I watched my beautiful boy, I literally lost my breath knowing I could never take this simple act for granted. "Breathe, my love, breathe."

Christmas 2008

Christmas was great. Seamus oohed and aahed over every present, at least until he got to the socks, "Ohhh, socks." He loved his stuffed Spiderman who talks and even snores, the Wonder Pet stuffed animals who have been attached to his side, the Hungry, Hungry Hippos game (thanks Uncle Woody and Aunt Chris) and his Honey Bee game which is just a bee on a stick that you jump over as it revolves around. He's been playing that for three days and the "Flight of the Bumblebee" is quickly becoming my least favorite song. He also got a set of plastic food and dishes because he loves to play restaurant. For months he's been taking our orders and delivering invisible food. Now he can actually give us "real" pretend food.

Mommy and Daddy got a new great big tv from Ga which will be great to play the Wii on. It was nice but also sad, especially for Ga, since it was the first one without Pa.

But the big news is Seamus has been wearing big boy panties since Wednesday! He said he didn't want to wear diapers anymore and he's doing great. There's only been a few accidents and with all the liquid we push through his g-tube all day, that's really amazing. Today was the first time we went somewhere while he was wearing underwear and it went well. Tonight he's been having some of his GI issues and asked to wear diapers so it will be slow going but we'll get there.

My little cutie

Our computer hasn't been working at home so I haven't been able to upload any new pictures but these are ones we had done last month. I also stumbled upon some we had taken in the Spring of 2007. I can't believe how much he's grown in just a year and a half.

We spent almost all weekend at home. I don't think Seamus is feeling up to par yet. Yesterday, he and I were going to have an adventure to see the National Christmas Tree by the White House. I thought he'd be all excited to see the "giant tree" but he really just wanted to stay home and play with his cars and the "tunnel" our builder gave him from the roll of flooring (it's like a 6 foot long paper towel tube.)

Right before we were to leave, he was fussing around so I warned him "If you don't get ready right now, we won't go see the tree." His response was "Okay, we won't go." I really wanted to see it but what can you say to that.

A little while later, James asked him if he was going on an adventure with Mommy and he said "I'll meet her there." James said "You might get lost if you don't go together." Seamus came and found me and said "Mommy, you don't have to go by yourself. I'll come with you," like he was doing me a favor, which I guess actually he was.

On the car ride there, he kept saying he was sooo tired. When we were two blocks away from our destination, I looked in the backseat and he was out like a light so I headed home.

So much for our big adventure.

Seamus had his clinic appt yesterday and things went really well. His cough has worsened since he was in the ER but Dr P said his lungs sounded fine. She put him back on antiobiotics just in case though. He gained a little under a pound, which is great considering he went without food for almost 2 days earlier in the week. He's also taller and his BMI went up a little.

But the greatest thing, as far as Seamus is considered, is the present Santa left for him, the Go Diego Go! game for the Wii. He would have gotten it at the party last weekend but he was too sick to go. Santa left it at the clinic for him instead. It's awesome! We only got it yesterday but we've already played it for about 5 hours. I would highly recommend it for any toddler because it's very active but not too hard to figure out. He told me he wishes Diego could come out of the tv and play with him.