Wednesday, May 27, 2009

Clean out

Please think poopy thoughts for Seamus. He's in the midst of another home clean-out. He had one a month ago which obviously didn't fully do the trick because he's right back to where we started.

This time we insisted on having an x-ray done after the treatment so we could prove to them that one and a half liters of Go-lytely at home isn't nearly enough. We're getting one tomorrow.


Natalia Ritchie said...

So sorry to hear that your little guy has to drink that stuff!! It's awful! I had my issues along the way also.

May I make a suggestion? I know that it may not work for everyone, but so far I have had some good results, and some other people also. About 10 years ago, I was having blockages all the time. I was drinking Go-lightly all the time, and mineral oil, and all that stuff. The GI doc eventually was thinking of operating, and I was devastated. Sometime during all this I went to visit my aunt in Chicago and during my stay she mentioned her kids having issues with their GI track. They did not have CF, so I thought it was not quite the same thing. But regardless, my aunt told me to drink Metamucil every morning. 1 glass. I did. For about a week, and my GI problems vanished. When I went back to clinic, the docs were amazed, and admitted that they never thought that a simple lack of fiber is a huge problem with people with CF. And of course worth a try, since it's a heck of a lot easier to drink than GO-Lightly. I have been drinking it ever since. No more GI issues.

Since then our dietician mentions this to patients at clinic, and the success rate with it is quite large. It is a very simple, natural, and harm free solution. May be give it a go. Often docs (and us) forget to do the simple things first, before we go to the extreme measures.

It's worth a try. Blockages can be such a pain, in the you know what! I wish your little man luck with it!

Tooter's Mommy (Courtney) said...

I wonder if you could also try Benefiber? It's just like Metamucil only flavorless, so you could add it to any bevereage or food.

I hope everything comes out okay!

Julie said...

Thanks for the tip. We'll ask about this. The only problem is he can't drink large quantities quickly. That's why his Go-lytely has to go through his g-tube. Does Metamucil or Benefiber need to be drunk quickly all at once? Do you think it would clog his tube?

Natalia Ritchie said...

yup that's what you have to ask about. Since it does thicken. I try to take into account how little he is...and I forget that he's just a wee little guy! See what they say. I just want to run things by you, since you never know. Anything to make him happier, more healthy and comfortable!