A celebration of all that is good in life despite dealing with a terrible illness, Cystic Fibrosis. When Seamus first started talking, he would say "Mugga Bugga" when he was having fun. This blog is a record of a childhood filled with fun.
Monday, August 18, 2008
Goodbye Pa
Seamus' grandfather, who he called Pa, died yesterday. Seamus loved him very much and is going to miss him terribly. Pa and Seamus had a special relationship. Even when Pa was at his sickest, Seamus could make him smile with his high fives and silly questions.
Pa had been sick for a very long time with cancer. In October 2007, Pa and Ga, moved down to MD from Rochester NY to be with us. While we have been building an addition on our house for them, they have been living in a temporary apartment. Twice a week, they baby-sit Seamus and lately he hasn't been able to play with Pa very much. Seamus understood he was sick and had to go to the hospital last week.
Pa was in hospice care where my mom and I stayed with him and yesterday James and Seamus stopped to see us. It just happened to be right after Pa passed away. I was afraid I wouldn't know how to explain Pa's death to Seamus but before I had a chance to figure it out, he asked me "Where's Pa, where's Pa?"
"Pa's in heaven now with the angels, honey, and he isn't sick anymore."
"He's not?" The idea of Pa being well really seemed to make him happy.
But later when he saw that Ga was sad, he seemed confused. I told him she missed Pa and he said "But Pa is in the hospital". We told him again about Pa being in heaven and this time he said "I'm frustrated".
I'm worried because Seamus knows that he gets sick and has to go to the hospital often, just like Pa. I don't want him to associate going to the hospital with going to heaven.
Saturday, August 9, 2008
County Fair
I have two words for you, pig races. As soon as Seamus heard there were pig races at the County Fair, it was "When are we going to the pig races?, Where are the pig races?, Can't we go to the pig races now?"
This County Fair was just like what I would imagine a 1950's County Fair in IA would be, minus the deep-fried Oreo cookies and Wii raffle. You'd never think we were less than an hour away from Washington DC.
We saw cows, pigs, sheep and horses. Seamus got to play with a bunch of kids in the "corn pit", a giant sandbox full of animal feed. A clown made him a giant spider balloon that was almost bigger than him.
He went for a ride on the bug roller coaster and car ride, alone like a big boy, and he ate cotton candy. He even won a prize stuffed whale playing a game. It was the duck pond where everyone wins but never the less, he still won.
And of course, there was the pig races (and a duck race). It didn't quite live up to all the build up but Seamus didn't notice. He was too busy playing dragon vs cow and pig with the kid next to us.
On another note, Seamus is totally into the Olympics. I never expected that. He recognizes all the gymnastic equipment and keeps saying "I did that in gymnastics." He also watches the swimming and says they are "scooping and kicking" like he does in swim class.
This County Fair was just like what I would imagine a 1950's County Fair in IA would be, minus the deep-fried Oreo cookies and Wii raffle. You'd never think we were less than an hour away from Washington DC.
We saw cows, pigs, sheep and horses. Seamus got to play with a bunch of kids in the "corn pit", a giant sandbox full of animal feed. A clown made him a giant spider balloon that was almost bigger than him.
He went for a ride on the bug roller coaster and car ride, alone like a big boy, and he ate cotton candy. He even won a prize stuffed whale playing a game. It was the duck pond where everyone wins but never the less, he still won.
And of course, there was the pig races (and a duck race). It didn't quite live up to all the build up but Seamus didn't notice. He was too busy playing dragon vs cow and pig with the kid next to us.
On another note, Seamus is totally into the Olympics. I never expected that. He recognizes all the gymnastic equipment and keeps saying "I did that in gymnastics." He also watches the swimming and says they are "scooping and kicking" like he does in swim class.
Wednesday, August 6, 2008
First Haircut
Saturday, August 2, 2008
Nice Days
Seammy and I decided to take it easy today. Since it's raining, we can't go to swimming class so we slept in and then Seammy joined me in bed. We were there for hours reading books and playing hide and seek under the covers. I feel like I'm coming down with a cold and it was the hardest thing to stop myself from smothering him in hugs and kisses.
Last night, I came home from work and we spontaneously decided to go out. The town next to us has a new little downtown area with a big fountain to run in and all kinds of new restaurants. Seamus loves it. While Mommy and Daddy ate, he played with the kids and got soaked. I knew he wouldn't eat much dinner but we let him have ice cream (sorbet for him) anyway. Isn't that what summer's all about?
Here are some pictures of our Chicago trip:
Last night, I came home from work and we spontaneously decided to go out. The town next to us has a new little downtown area with a big fountain to run in and all kinds of new restaurants. Seamus loves it. While Mommy and Daddy ate, he played with the kids and got soaked. I knew he wouldn't eat much dinner but we let him have ice cream (sorbet for him) anyway. Isn't that what summer's all about?
Here are some pictures of our Chicago trip:
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