When I asked Seamus what he was going to do today he said "Elmo Finger" which is what he calls the pulse-ox probe they put on his finger (and makes it red like Elmo)to measure his oxygen levels in the hospital.
I think that means he's feeling pretty bad and he knows when he feels that way, it's time to go in. The insurance company wanted us to wait until Tuesday but we're heading to the ER in the morning instead.
Thursday, August 30, 2007
Tuesday, August 28, 2007
11th time the charm?
We're heading back into the hospital, hopefully tomorrow. Seamus needs to be cleaned out again. We're just waiting for the call to tell us they have a bed ready for us.
This will be his 11th stay so we're hoping they come up with some new ideas soon. I'll post updates when I can.
This will be his 11th stay so we're hoping they come up with some new ideas soon. I'll post updates when I can.
Monday, August 27, 2007
I say Yay!
Seamus has developed a funny new habit. Instead of just saying "Yes" or "No", he will say "I say Yes" or "I say No". This weekend we heard a lot of "I say Yay!".
We surprised him and took him to Sesame Place outside of Philadelphia. We told him we were going to meet Uncle Rick, who he adores, but didn't tell him where. As soon as we pulled into the parking lot, he went nuts, and that was just from seeing the parking signs with Elmo and the gang.
There's no way I could fully express how much Seamus loved it. From a 2 year old's perspective, it was the best place ever. He got a chance to meet Ernie up close and get a hug and kiss! He saw Elmo's World live! He swam with Bert and Ernie and went on a spinning balloon ride in Cookie's balloon (which he declared was "Awesome")! And the parade... We saw everybody and they all came over and waved hello to us!
Seamus is such a sweet good natured kid. Even though it was ridiculously hot and humid, he never complained. He waited patiently in line and was just so happy. I can't say the same for us adults, who were all grumpy at different points in the day.
He is just the friendliest child too. He wants to talk to everybody and it just breaks my heart when people don't respond to his cheerful "Hi". How could you ignore such a heartfelt greeting? He was just in heaven having so many people to chat with.
Every night before bed, we snuggle and say our "Good Nights" to everybody we know (and I mean everybody) and talk about all the fun things we did that day. That night's chat was especially nice. I thanked him for being such a good boy and told him I was so proud of him. It's the best way to end the day, laying in the dark giggling with my beautiful baby boy.
We surprised him and took him to Sesame Place outside of Philadelphia. We told him we were going to meet Uncle Rick, who he adores, but didn't tell him where. As soon as we pulled into the parking lot, he went nuts, and that was just from seeing the parking signs with Elmo and the gang.
There's no way I could fully express how much Seamus loved it. From a 2 year old's perspective, it was the best place ever. He got a chance to meet Ernie up close and get a hug and kiss! He saw Elmo's World live! He swam with Bert and Ernie and went on a spinning balloon ride in Cookie's balloon (which he declared was "Awesome")! And the parade... We saw everybody and they all came over and waved hello to us!
Seamus is such a sweet good natured kid. Even though it was ridiculously hot and humid, he never complained. He waited patiently in line and was just so happy. I can't say the same for us adults, who were all grumpy at different points in the day.
He is just the friendliest child too. He wants to talk to everybody and it just breaks my heart when people don't respond to his cheerful "Hi". How could you ignore such a heartfelt greeting? He was just in heaven having so many people to chat with.
Every night before bed, we snuggle and say our "Good Nights" to everybody we know (and I mean everybody) and talk about all the fun things we did that day. That night's chat was especially nice. I thanked him for being such a good boy and told him I was so proud of him. It's the best way to end the day, laying in the dark giggling with my beautiful baby boy.
Friday, August 24, 2007
Beginning
This is my first post and I'm a little nervous. I decided to start this blog because I wanted to make a record of how great my life is. I have a wonderful husband, James, who is a great father to our 23 month old son, Seamus, who is the best kid in the whole world. Seamus has Cystic Fibrosis but I don't intend to dwell on that in this blog. I want Seamus to be able to read this one day and think back on a childhood filled with singing crazy songs and dancing the jig.
I named it Mugga Bugga because that's one of Seamus' favorite things to say. We don't really know what it means but he sure has a good time when he says it. I try to keep that in mind when I'm having a rough day.
Hopefully, I will be able to keep this updated. I'm not very good at these kinds of things but I'll do my best.
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